Dysautonomia is very misunderstood. Adding embarrassment only compounds the desire to isolate. Being prepared for upcoming symptoms will give you confidence and insight into patterns that may be avoidable in the future.

Dysautonomia is a medical condition that affects the autonomic nervous system, which controls involuntary bodily functions such as heart rate, blood pressure, digestion, and temperature regulation.

Some common embarrassing symptoms of dysautonomia include:

1. Excessive sweating (hyperhidrosis)

2. Inappropriate or unpredictable bladder or bowel movements

3. Fainting or near-fainting (syncope or pre-syncope)

4. Blood pooling in the legs when standing (orthostatic hypotension)

5. Difficulty regulating body temperature, leading to flushing or cold sweats

6. Dry mouth and eyes

7. Tremors or shaking

8. Digestive issues such as bloating, nausea, vomiting, or constipation

9. Poor exercise tolerance

10. Brain fog or difficulty concentrating

If you have Dysautonomia, you may have already experienced many of these symptoms.

A few helpful tips to be more proactive with your healthcare and ultimately your life.

• Consider carrying any necessary supplies, such as medication or personal hygiene products, with you to manage your symptoms discreetly. This may look like compression, jackets, blankets electrolytes, and/or a change of clothing.

• Explain to those close to you what you are feeling and how they can help you.

• Bring a notecard in your purse or backpack that explains what your diagnosis is and what you may need to help you get through an episode.

• Get the Dysautonomia Travel checklist

Being your best advocate when dealing with medical issues means taking an active role in your healthcare and speaking up for yourself. It’s important to be informed about your medical condition, treatments, and medications, and to ask questions when you don’t understand something or have concerns.

Don’t be afraid to seek a second opinion or to express your preferences and values to your healthcare team. Remember that you are the expert on your own body and health and that you have the right to be involved in decisions about your care. By advocating for yourself, you can ensure that you receive the best possible medical care and outcomes.